Rare adj
1. not often happening or found
2. particularly interesting or valuable, especially to collectors or scholars, because only a few exist
3. unusually great or excellent
4. thin in density and containing so little oxygen that breathing is difficult
Our journey goes on. It is a rare journey in all the meanings listed above.
You know as we do that Paget’s disease of the nipple is not often found. I suppose that makes it of particular interest to the medical community.
But suppose that Deb had not just one form of Pagets disease but two? In that event, then God’s grace would have to be unusually great, and we would be left a bit winded.
So it is and so we are.
Tuesday Debbie went for a second biopsy for a lesion that we have been watching for a number of months now. There had been some other tests and treatments but nothing really made it better. Hence the biopsy. Three deep conical excisions removed from three areas that should have represented the center, the edge and normal tissue. All came back with a positive confirmation of gynecological Paget’s disease. Debbie learned the results on Thursday and phoned me. I was in Los Angeles on my way to Indonesia. So here it is:
Gynecological Paget’s disease is an extremely rare form of abnormal cells that are either a precursor to cancer or indicate an underlying cancer. There is no relationship between the breast cancer Paget’s disease and this gynecological form. There are only four other known cases reported in medical literature of women with both. Deb will undergo a “wide excision” surgery to remove all the abnormal Paget’s cells along with a margin of safety and a sampling of lymph nodes in the groin. The pathology report will indicate the extent and staging of cancer, if in fact there is indication of cancer beyond the presence of the Paget’s cells. Her recovery period will be about three weeks. We will have a well renowned doctor who trained and works at Johns Hopkins in addition to Mercy Medical Center where she will have the surgery
Yes, I went on to Indonesia. You probably wonder why? Of course by the time I heard I was already 8 hours into the trip that lasted for about 42 hours. But that was not a reason to carry on. The reason to carry on is that in times of rare air, you have to carry on. If you are swimming at the bottom of a body of water you don’t stop swimming or you drown. If you are climbing Mt Everest you don’t stop or you freeze. So we decided to go on. The conference here is short, and my part is over by Wednesday. Perhaps I will be able to make an early return.
It is a unique moment here. Indonesia is the country with the largest Muslim population in the world. Significant violent conflict has occurred between Muslims and Christians here. As usual there is a history of significant conflict in the church among leaders. This conference begins with the government blessing, the Muslim community will be represented by a highly respected leader. Over forty denominations are already represented, and over 2300 attendees are here. The seminary dean is in my DMin program in Manila and has helped bring this gathering of church leaders, Indonesian missionaries, Muslim and national leaders to a conference on biblical peacemaking. This too is rare air.
Tuesday Debbie has an appointment with an unusually excellent doctor. He will advise and plan for a surgery sometime in the near future that will not only take the “wide excision” but attempt to redo some of the pelvic surgery that did not “take” six weeks ago. By the time I get back we should know when that might happen and what it might involve. Right now we are just holding our breath.
Genesis says that the Creator God exhaled into Adam the “breath of life”, and he lived. He lived to labor. He labored to show God’s glory. God’s glory was reflected in Adam’s love and obedience. It was even better reflected when God provided for redemption when Adam made the choice to sin. That sin infected the world and we now live in that infected world. But the Redeemer lives. He breathes into us the breath of life that neither Paget’s nor any other presence or power can take from us. That is rare air—nothing is greater or better. Breathe it with us.
Monday, June 30, 2008
Saturday, June 14, 2008
7000 emails
7000 emails.
Actually probably about 7100 since there are some in my inbox for Debbie that she has not read yet.
If you have to manage a hefty email account you know what a burden that is. And it grows every day. So Deb went back to work this week and was dreading going in—you can understand why. Of course those emails had not all accumulated just from her time out for surgery and recovery.
Some have wondered why she doesn’t stay out longer—but the month she had has gone by already, and extra days will be needed again towards the end of the year for the final reconstruction surgery.
Exercises? Some days more than other days. With a return to “normal” it has been hard for her to build in time for regular post-surgery rehab exercise. In fact since she is not walking to work now she doesn’t get that either. For people like us the regular disciplines of life are some of the most difficult to maintain. We don’t eat on a schedule, don’t travel on a schedule, don’t play on a schedule, don’t sleep on a schedule (but usually it is at night!) and I guess work is the schedule—which we tend to put in to a lot of different time slots.
So, before heading back to “work” Deb managed to pull the 7,000 down to 6,000. The practice here is that when you don’t answer after a certain period of time, then an email is either too old to be of importance, forgotten by the sender, or the matter needing comment was resolved, ended or missed. I suggested that I could cause her computer to crash and it would be faster to just say “my computer crashed and I lost your email” but she figured that it would take more time to remember the 7,000 and write them the message than to sort through the stack. Probably after a week she is back to 6500.
We have had some very interesting visits from folks this past month. Some have been work-related and some have been reconstructing and building on long friendships. We are deeply privileged to have friends that understand and love crazy people like us. These are blessings of the Savior who walks with us in the valleys and on the mountains, and in the skies.
Two more sets of good friends expected in this week. It is a good thing that all our emails don't sit in the box unattended!
Actually probably about 7100 since there are some in my inbox for Debbie that she has not read yet.
If you have to manage a hefty email account you know what a burden that is. And it grows every day. So Deb went back to work this week and was dreading going in—you can understand why. Of course those emails had not all accumulated just from her time out for surgery and recovery.
Some have wondered why she doesn’t stay out longer—but the month she had has gone by already, and extra days will be needed again towards the end of the year for the final reconstruction surgery.
Exercises? Some days more than other days. With a return to “normal” it has been hard for her to build in time for regular post-surgery rehab exercise. In fact since she is not walking to work now she doesn’t get that either. For people like us the regular disciplines of life are some of the most difficult to maintain. We don’t eat on a schedule, don’t travel on a schedule, don’t play on a schedule, don’t sleep on a schedule (but usually it is at night!) and I guess work is the schedule—which we tend to put in to a lot of different time slots.
So, before heading back to “work” Deb managed to pull the 7,000 down to 6,000. The practice here is that when you don’t answer after a certain period of time, then an email is either too old to be of importance, forgotten by the sender, or the matter needing comment was resolved, ended or missed. I suggested that I could cause her computer to crash and it would be faster to just say “my computer crashed and I lost your email” but she figured that it would take more time to remember the 7,000 and write them the message than to sort through the stack. Probably after a week she is back to 6500.
We have had some very interesting visits from folks this past month. Some have been work-related and some have been reconstructing and building on long friendships. We are deeply privileged to have friends that understand and love crazy people like us. These are blessings of the Savior who walks with us in the valleys and on the mountains, and in the skies.
Two more sets of good friends expected in this week. It is a good thing that all our emails don't sit in the box unattended!
Wednesday, June 4, 2008
"normal"
Ever wonder what "normal" means? For us, "normal" means "the way we usually are". I find that sometimes I want to be "extra ordinary" and I tend to contrast that with "normal". Now just what is "extra" about extra ordinary you wonder?
"Extra" ice cream would mean a bigger portion. "Extra special diet" would mean more diet with a better taste, I guess. Life in general for Karl and Debbie is somehow not back to normal yet. It is however, extraordinary.
You know the way we usually are--flying just above the ground and in several directions, often different directions. Book projects, teaching, program supervision, planning. That would be in Indonesia, China, Philippines, Africa or possibly the US. It might find me doing a mediation or Debbie visiting a funding office in D.C. Probably it would be receiving special guests. Definitely it would find us in an international student Bible study every Friday and a church small group every Monday when we are in town.
So the way we have been in this last week is sort of like that normal, but a bit extra ordinary. We have not been flying around or supervising or teaching or writing. Nor have we been to California or Florida or Chicago (Karl did run off to Montana for a week though). The International students have still come and the small group met in our home for the last month. And we have been together for the last two months, and that is extra ordinary, and special.
Sunday after church we took a walking tour of the gardens in our "Charles Village" part of Baltimore. Mind you, in the city you tour these micro-gardens from the alley because that is the only place that has more than a 144 square feet without concrete (although our alley garden consists of a few green things around the base of a tree surrounded by brick and concrete). We have had a good supply of wonderful friends from many different eras of our lives come to visit us. That is VERY special and reminds us of God's love through deep friendships that pick up where they left off years earlier. Most folks don't quite know how to relate to either dogs or humans that run frenetically just above the surface of the ground, so when we stop we find that we still have friends who love us.
If you have not yet put the picture in your mind, then let me just say that Debbie is healing wonderfully and will start to wade through the 6,000 emails in her inbox (that is not an exaggeration). We had a wonderful planning meeting with a friend and colleague from Nairobi that might actually get us on a plane to Nairobi together in July. Karl's medication has been changed and he is well, a bit more normal. The new medication takes 45 days to get up to full blood level, so we will see what happens. Deb went to the doctor yesterday for some additional "filling" and came back complaining of the pain. Actually the pain was a good sign that at least sensation and feeling was starting to return to operation site. She "normally" does her three times a day exercises once a day. (NOT GOOD--can you tell who is writing this?)
I was starting to catch up on my email yesterday and settled to write a prayer letter when I noticed that the house behind us was putting in a new concrete parking pad, so I quickly went and asked if I could have a wheelbarrow or two. I was informed that there was just about that much left, so I carried a bucket into the basement to fill a trench cut for a new sewer line. Upon my return I found that the "normal" concrete left over had been placed in the middle of the drive area from which I had removed all the old concrete. I looked at the "normal" and my jaw dropped. It was a mountain. The driver said, "there was more in there than I thought, they must have weighed wrong, looks like about two yards". For those of you who don't know what that means, it is about the cubic equivalent of your washer, dryer and stove combined. But not to worry, I had no form boards, no concrete tools, and only myself to do the work. Not a problem? Concrete sets in about an hour.
Oh yes. Back to normal.
"Extra" ice cream would mean a bigger portion. "Extra special diet" would mean more diet with a better taste, I guess. Life in general for Karl and Debbie is somehow not back to normal yet. It is however, extraordinary.
You know the way we usually are--flying just above the ground and in several directions, often different directions. Book projects, teaching, program supervision, planning. That would be in Indonesia, China, Philippines, Africa or possibly the US. It might find me doing a mediation or Debbie visiting a funding office in D.C. Probably it would be receiving special guests. Definitely it would find us in an international student Bible study every Friday and a church small group every Monday when we are in town.
So the way we have been in this last week is sort of like that normal, but a bit extra ordinary. We have not been flying around or supervising or teaching or writing. Nor have we been to California or Florida or Chicago (Karl did run off to Montana for a week though). The International students have still come and the small group met in our home for the last month. And we have been together for the last two months, and that is extra ordinary, and special.
Sunday after church we took a walking tour of the gardens in our "Charles Village" part of Baltimore. Mind you, in the city you tour these micro-gardens from the alley because that is the only place that has more than a 144 square feet without concrete (although our alley garden consists of a few green things around the base of a tree surrounded by brick and concrete). We have had a good supply of wonderful friends from many different eras of our lives come to visit us. That is VERY special and reminds us of God's love through deep friendships that pick up where they left off years earlier. Most folks don't quite know how to relate to either dogs or humans that run frenetically just above the surface of the ground, so when we stop we find that we still have friends who love us.
If you have not yet put the picture in your mind, then let me just say that Debbie is healing wonderfully and will start to wade through the 6,000 emails in her inbox (that is not an exaggeration). We had a wonderful planning meeting with a friend and colleague from Nairobi that might actually get us on a plane to Nairobi together in July. Karl's medication has been changed and he is well, a bit more normal. The new medication takes 45 days to get up to full blood level, so we will see what happens. Deb went to the doctor yesterday for some additional "filling" and came back complaining of the pain. Actually the pain was a good sign that at least sensation and feeling was starting to return to operation site. She "normally" does her three times a day exercises once a day. (NOT GOOD--can you tell who is writing this?)
I was starting to catch up on my email yesterday and settled to write a prayer letter when I noticed that the house behind us was putting in a new concrete parking pad, so I quickly went and asked if I could have a wheelbarrow or two. I was informed that there was just about that much left, so I carried a bucket into the basement to fill a trench cut for a new sewer line. Upon my return I found that the "normal" concrete left over had been placed in the middle of the drive area from which I had removed all the old concrete. I looked at the "normal" and my jaw dropped. It was a mountain. The driver said, "there was more in there than I thought, they must have weighed wrong, looks like about two yards". For those of you who don't know what that means, it is about the cubic equivalent of your washer, dryer and stove combined. But not to worry, I had no form boards, no concrete tools, and only myself to do the work. Not a problem? Concrete sets in about an hour.
Oh yes. Back to normal.
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